Portsmouth’s MPs, Amanda Martin MP and Stephen Morgan MP, have welcomed the Government’s announcement that every baby born in England will be screened for Spinal Muscular Atrophy (SMA) from 2027, describing it as “fantastic news for families” and a major step towards ending the postcode lottery in access to life-saving early diagnosis.
The announcement follows a joint letter sent by the two MPs last month, raising concerns that Portsmouth had been excluded from the initial rollout of the screening programme and urging NHS leaders to ensure that no baby missed out simply because of where they were born.
Universal screening means every newborn in England will be offered the simple heel-prick test, allowing babies with SMA to be identified and treated before symptoms develop, dramatically improving outcomes and giving many children the opportunity to live healthy, active lives.
Amanda Martin MP, Member of Parliament for Portsmouth North, said: “This is incredibly welcome news and a real victory for families across the country. Last month, Stephen and I wrote jointly to raise our concerns that babies born in Portsmouth risked missing out on this life-changing screening simply because of where they lived. No family should ever face a postcode lottery when it comes to their child’s healthcare.
“Today’s announcement means future families will have the reassurance that every baby, wherever they are born, will have access to this vital screening. I would also like to thank everyone who contacted us, shared their stories and tagged us on social media to help raise awareness of this issue. Your voices have helped keep this firmly on the agenda.”
Stephen Morgan MP, Member of Parliament for Portsmouth South, said: “This is fantastic news and demonstrates what can be achieved when families, campaigners, charities and elected representatives work together. Early diagnosis is absolutely crucial for babies with SMA, giving them the best possible chance to receive treatment before irreversible damage occurs.
“I want to thank everyone in Portsmouth who got in touch with us, supported the campaign and helped shine a light on this issue. Today’s announcement is a significant step forward for newborns and their families, and I’m delighted to see universal screening becoming a reality.”
The MPs also paid tribute to the tireless campaigning of families affected by SMA, charities and campaigners across the country whose determination helped secure this important change.
Amanda Martin MP and Stephen Morgan MP said they will continue working together to ensure Portsmouth families receive the very best healthcare and that every child has the best possible start in life.
